Celiac, vitamin deficiency, and shinsplints

photo courtesy of LMS

Several years ago, before we found out I had celiac, I had a very extensive physical done, and my vitamin D levels were low, as was my calcium. They weren't sure why I was low, but ever since I've taken supplements to correct the deficiency.

I read a post awhile ago that was eye-opening. I originally found Pete's blog pre-celiac diagnosis, when I was looking for info on closed ski resorts in Colorado, which he wrote an interesting book about. Once I went gluten free I started reading his blog, which as a fellow gluten free athlete, though I'm nowhere near his level, is quite helpful and encouraging.

Pete says that the athlete they highlighted had bad shinsplints that were caused by low levels of vitamin D and calcium. He goes on to say that this is a common occurrence in athletes with celiac that hasn't been diagnosed. Once she went gluten free her vitamin levels increased, her bones got stronger, and her shinsplints went away.

Hmmm. Sounds like me. Only I'm not a champion runner :)

Seeing the connection between vitamin deficiency (Ca and D) caused by the untreated celiac and shinsplints and stress fractures was good for me. As I've mentioned before, I've had problems with chronic shinsplints since I was in college. I've seen progress recently, which I attributed to the physical therapy I've been doing, but after reading Pete's post, I think it's a combination of the PT and the vitamin supplementation. Years of intestinal damage and low vitamin levels doesn't get undone overnight, unfortunately.

I'm coming up on my 3 year gluten free anniversary this month, but I'm only a couple months past my 1 year "free of everything my body doesn't like" anniversary (less than that if you count from when I eliminated almonds and coconut). I think I've made more progress this past year than in the previous two. I know LMS has improved more this past year. I sorted her clothes a couple weeks ago, and she's finally outgrowing a lot of her clothes. She didn't grow much the last two years, so it's nice to see evidence that her growth is picking up again.

Yay for progress, and yay for progress validated!

Vindication

Before we moved, I tried to keep LMS on a gluten free diet, but I didn’t push it too hard. Daddy Daughter dates were at Pizza Hut, crackers and cookies were always available at Grandma and Papa’s, and so on.


After we moved, I tried a little harder, but I didn’t stress too much if she ate something with gluten. When Mr M headed out on a business trip, I decided to do it right and have her go completely gluten free.

Along the way, I wondered whether I should pursue the issue.

Was I being super-paranoid? Was I projecting my issues onto her?

Then I’d remind myself why I thought it was worth focusing on: she’s been a lot crankier and a lot more prone to meltdowns the last two years, and in the last 6 months or so she’s had intestinal “issues”: nasty, stinky, sticky poop that she can’t control, despite the fact that she’s been potty trained since she was 2.

She was completely gluten free for two weeks, and what a difference. She was happier, calmer (significantly fewer meltdowns) and had normal bowel movements in the toilet.

After two weeks of being gluten free, she ate some crackers in Primary on Sunday.

Monday the uncontrolled nasty, stinky, sticky poop in the underpants returned.

I feel vindicated.

I didn’t feel well for a number of years, and I know I tended to be cranky. I think that’s why LMS has been cranky- she hasn’t been feeling well, but didn’t know how to verbalize it.

Now we’re working on asking if proffered food has gluten in it. ‘Does this have gluten in it?’ If the answer is yes, then ‘No, thank you’. And I’m trying to make sure I have gluten free snacks available at home and wherever we go, so she doesn’t feel deprived.

Fail to plan, plan to fail

My reaction to gluten seems to be evolving. It used to be throat swelling, now it's burning nauseous pain in my stomach. I think I'd rather have the throat swelling- it doesn't last as long and isn't as painful.

Last night we were coming home from a conference we attended, and ended up with a limited number of choices for dinner. I'd planned on Chipotle, but neglected to make sure that there actually was one in the area. Since there wasn't, I pulled out my blackberry pearl and did a quick search for gluten free options at Ruby Tuesday and Applebees, the only restaurant options available. Both restaurants had very limited options, so we picked Applebees. BIG MISTAKE! Aside from the terrible service, poor food quality, and extremely slow cooks, I managed to eat enough contaminated food to make today very uncomfortable: my stomach's been killing me all day.

We wouldn't have eaten there at all except that I hadn't been able to eat much at the lunch provided and had forgotten to bring adequate food to supplement what I could eat and I was starving. Not a good position to be in. I blame my lack of preparation on how I've been feeling (still recovering from the last round of gluten problems) and the stress of trying to get everything ready for Mr M to go on an extended trip. That's not a good excuse, but it is a fact of life that things aren't always how we want them to be.

A few days ago I purchased Healthy Snacks To Go from KitchenStewardship.com. It's an ebook with more than 30 recipes for snacks that aren't full of processed ingredients. They're not all gluten free, but a number of them are (and are clearly labeled gluten free) or can be easily tweaked. Since it only cost $6.95, I decided to give it a whirl and was not disappointed. Quite a few of the recipes are for snacks that I can prepare ahead of time and carry with me for times when there's nothing safe for me to eat. I also really like that they're healthier and cheaper than store-bought snacks.

Some of the recipes I'll start making next week: granola bars, homemade lara bars (the store-bought versions have been a staple I keep in my purse, but they're pricey and I haven't bought any in awhile), applesauce, fruit leather, and yogurt. Yum!

All the stomach pain I've endured recently has definitely emphasized that I must be prepared at all times. I don't want to be really hungry and not have any safe food options. I really don't want to have this stomach pain ever again.

Hidden gluten got me again

The old nauseous burning pain in the stomach resurfaced this week. At first I attributed it to stress, but then I realized that this is the same nauseous burning pain in the stomach that I had before I went gluten free.

So, either I have another food allergy, which is possible- eggs have given me problems off and on for years, or I've somehow been adding gluten. I haven't been having the swollen throat reaction, so this whole thing crept up on me. After reviewing what I've been eating the last few days, I narrowed it down to eggs, polska kielbasa, or one of my vitamins. If it's eggs, I'll have to completely eliminate them, but that will be the last option I try. The label of the polska kielbasa didn't have anything that should have given me this many problems, but I'll probably avoid it in the future just to be safe.

The most likely culprit at this point is one of my vitamins. I checked all the labels, and my vitamin d supplement could be the one- I recently started using a different brand than I had been buying, and the label says it's produced in a facility that also processes wheat (among other allergens). All my other vitamins specifically say gluten free.

I removed all the vitamin d capsules from my pill box, didn't take it last night, and so far my stomach is feeling better. The nausea burning pain feelings are still there, but not as bad. My appetite also feels a lot more normal. The last few days I've had horrible cravings to eat, eat, eat. After a year of being gluten free I'd forgotten just how I react to it. I need to write down these symptoms so if I start feeling them again I'll realize quicker that something is off.

It's amazing that even tiny amounts of gluten can make me feel this crummy. This also highlights the dangers of cross-contamination, and the fact that it is a real issue.

Recovering from gluten poisoning

Looking back, I can recognize the symptoms, but in the moment I was too sick to put them all together and realized what was happening. I'm writing down how I felt in hopes that I won't let things spiral out of control again, but catch them early on instead.

Fuzzy brain- inability to think clearly
ADD- inability to sit still and get anything done
Massive food cravings
Nauseous burning pain in the stomach
Irritability/short temper/very little patience

These are all things I experienced before I went gluten free, and they're all things I never want to experience again.

Nothing like being slowly poisoned...

Living with two chronic diseases

This is a post I've been thinking about for while, and am finally finishing.

Back in August, the Meanest Mom, who has a chronic disease of her own, hosted an online Ms. Chronic Disease of America E-Pageant. Basically, you wrote in with all the sexy details of your chronic disease. I thought about entering, but I'm just not as clever with words as some people. The first contestant featured has PCOS, which got me thinking. I don't have just one chronic disease, I have two. I will have to deal with PCOS and gluten intolerance my whole life- they're not going to go away. I can minimize a lot of the symptoms, but if I do the wrong things I will definitely feel worse.

I've been feeling a lot better without gluten. After 10 years of feeling like crap (and sometimes worse), it's nice to feel almost human again. Unfortunately I keep forgetting that just because I've gotten to the root of part of my problem and figured out how to deal with it, doesn't mean that everything is completely better. I still have to deal with PCOS and yeast problems.

Comparatively, the gluten intolerance is way easier to deal with than the PCOS. Supposedly, they can both be controlled with a careful diet, but the results of a gluten free diet are seen much quicker (in me) than those of a PCOS friendly diet. I recently read 'The PCOS Diet Book' by Colette Harris. I was really hoping for something profound, but there really wasn't much I didn't already know: eat a variety of low glycemic index foods- whole grains, fresh fruits and veggies, lean meat, etc. Exercise. Lose weight. Get enough sleep.
The most helpful section was the section about herbal supplements to help with symptoms and hormonal imbalances. I'm trying Vitex to help with my hormones, and I'm taking aloe vera juice to help my intestines work properly.
The thing is is that I've always tried to eat healthy, exercise regularly, and tried (unsuccessfully till just recently) to lose weight and get enough sleep. Despite all that, I've never really noticed my symptoms getting better. Talk about depressing. Maybe that's why I've pretty much ignored it since I found out about it more than 5 years ago. Nothing works, so if I ignore it, it'll go away, right? I wish.

I've been losing weight (20 pounds now!), but it's slowed down the last few weeks. Thinking about fruit and its affect on me also got me thinking about PCOS. I've been ignoring it, but I can't keep doing that. Just because I figured out one cause of my weight problems, I haven't got all the causes of my weight problems taken care of (PCOS definitely causes weight problems, so combined with gluten intolerance, I never had a chance). So now I have to focus on figuring out how to eat to control the PCOS. I need to be more careful about the sugar that creeps into my diet. I need to work on not stress-eating, which I most definitely do (usually chocolate). I need to make sure I'm exercising a bit more consistently than I have been.

Hopefully if I can manage to do all that, I'll finally be able to alleviate some of the symptoms of PCOS, and continue to lose weight.

What I accomplished this week

Gluten free
The other day I tried a Lindt Lindor truffle just to see if I would be able to feel the effect of the gluten- yep I could. You wouldn't think there'd be that much barley malt in one little truffle, but there's enough to make my throat swell up (my reaction when I eat gluten). Definitely lends credence to those who say that cross-contamination is an issue- small crumbs do have an effect.

We ate at Chili's for my SIL's birthday last night. Before leaving the house I got online and checked their website for allergen information. They have a specific list of foods that are gluten free, so I printed that off and took it with me. I ordered the honey-bbq ribs, steamed broccoli, and black beans. Yum!

I think I've said it before, but the longer I stay away from gluten, the more my body is able to react to other things it doesn't like. In the past, everything was masked by the gluten. Now that that's out of the picture, other things are now recognizable as a problem. Like M&M's. I'm still trying to pinpoint what it is exactly, but I think it's one of the blue food colors they use in the blue and green M&M's. If I leave those ones alone, I seem to be ok. I checked the M&M's website to see if I could just order brown peanut butter M&M's (my fav), but you can only special order regular M&M's. Meh. Not worth the money.

Little Miss Sunshine
I called her my sweetie yesterday, and she responded by saying 'I not tweetie, I punkin!' Her daddy calls her 'punkin', and apparently she's decided she really likes it.

Projects
I finally sorted and restacked our 30 plus boxes of books. The boxes have started to bend, causing the stacks to tip precariously towards the door. Almost two years of being opened and shifted and stacked has not been good for them. So I went through each box, pulled out books that I didn't want to keep, and made sure each box was as full as possible in an effort to minimize box bending. I then restacked the boxes and put away the various items that had been tossed wherever convenient over the last few months. It's so much neater now, and we're no longer in danger of being squished by an avalanche of boxes of books.

I ended up with two boxes of books to sell/get rid of. I listed them on half.com today, and it went quite fast. You type in the ISBN, the condition, and any remarks about the condition, hit enter, and it brings up all the pertinent info, including a picture if they have one available. You decide a price, hit enter, and it's listed. So quick! Some of the books were old textbooks that I should have sold back to the bookstore after I was done with them, but for whatever reason, didn't. Really should have- I would have got a lot more money for some of them. Oh well.

While I was at it, I also prepped some items for listing on ebay- fall type things like a Halloween costume, boots, etc.

I also gathered up stuff for the yard sale my SIL and I are going to do (next weekend hopefully). I'll take the books that are listed for the least amount on half.com ($.75 is the lowest you can go) and see if I can get rid of them at the yard sale. I also have quite a few I couldn't list on half.com because they're too old and don't have an ISBN. It's nice to de-clutter a bit.

Yesterday I finally got my hair cut- the last time was last October. I've been letting it grow out since then, but the ends were just getting yucky, and it needed some shaping. It looks much better now.

Job Hunt
Mr M met with the investigator, so things are finally moving forward on his clearance. In the meantime, we're updating his resume and making plans for him to attend a job fair that should have a lot of companies that we would be interested in. He really needs to talk to representatives in person- it's too easy for resumes to get lost when submitted online.

A big lump in my throat

The longer I avoid gluten, the easier it is to recognize reactions to stuff I shouldn't be eating. My body is finally able to react to smaller amounts of gluten, now that large amounts (toast, flour tortillas, etc) aren't overwhelming my system. Now when I eat small amounts of gluten, my throat swells up a bit. Not enough to cut off my air supply or anything, but enough to make things uncomfortable and make me feel like I have a massive lump in my throat.

While this reaction is uncomfortable, it does help me pinpoint when I eat something I shouldn't. When I started reading about gluten intolerance, the people all mentioned that when they ate gluten they'd have to spend several hours in the bathroom. I figured since I never had intestinal symptoms, I wouldn't have a way of telling when I ate something containing gluten. Good to know that's not the case...

There's still something that's tripping me up, but I'm not sure what it is. I can't pinpoint it to one or two foods. I keep going back to those elusive 'natural flavors' or cross-contamination. Hard to tell which it is. Definitely a steep learning curve here.

Book review and pieces coming together

I just finished reading the book 'Healthier without Wheat' by Dr. Stephen Wangen. It was informative and got me thinking about the symptoms and experiences I've had throughout my life. He does talk about celiac disease, but makes the point that not everyone with a gluten intolerance has celiac disease. On the other hand, celiac disease is a type of gluten intolerance.

Some of the symptoms he mentions:
*Short stature due to malabsorption of nutrients (maybe that's why I'm so much shorter than all my siblings)
*Mental fogginess (have had this for years)
*Infertility (check)
*Miscarriage (double check)
*Gas, bloating, etc (check)
*Fatigue (for a period of time it was so bad I couldn't do much of anything)
*Weight gain/inability to lose weight (check)
*Abdominal pain and nausea (had this off and on for years, currently being treated with Nexium, but we're just treating the symptoms, not the cause)

There's others as well, a lot of which I've experienced in one way or another, these are just the major ones that caught my attention.

With gluten intolerance, the body doesn't absorb nutrients properly and/or causes immune reactions (inflammations of the various body systems), both of which end up causing systemic problems. One thing gets damaged, which stresses other parts of the body, which causes more problems, and it just keeps going and going, getting worse and worse.

It's all about balance
Because the gut is out of whack, bacteria, parasites and yeast can all proliferate and get out of balance. When I saw that he mentioned yeast, I was so happy! So many doctors just don't believe that yeast can cause systemic problems, so anytime I find one who does it's almost a cause for celebration. A lot of the symptoms of yeast overgrowth parallel those of gluten intolerance, which causes further confusion. I've known for years that I have yeast problems, but have been unsuccessful in treating it on a long term basis. I can do it for short periods, but not for very long.

I need to read the other book by this author- it sounded like he talked more about bacteria, yeast and parasite overgrowths in his other book.

My symptoms
In any case, I feel validated about my yeast problems. I've been thinking about it all, and I think I may have come up with a timeline for it all.

*As a child, I didn't have intestinal problems or anything, though I did have ear problems and sinus problems and I am a good 4 or 5 inches shorter than my next shortest sibling. Not sure if I got the short end of the genetic stick, or if it's due to nutrition issues caused by gluten intolerance.

* 10 years ago, on my mission, I had two bouts of food poisoning fairly close together, and I think that's what compromised my system. The gluten intolerance became more active and started causing debilitating symptoms (horrible fatigue, muscle aches, gas and bloating, mental fogginess, etc).

*After my mission my body was able to rest, and, I think, gradually was able to cope with everything better. The fatigue became bearable, the muscle aches went away, the gas lessened, etc. The mental fogginess has always followed me, unfortunately (it's why I barely passed my intro to organic chem class my last semester of college- I had a really hard time understanding an already difficult subject because my brain was so fuzzy).

The pieces come together
I got used to dealing with the symptoms and got on with life. I had problems getting pregnant, and had my first miscarriage 5 years ago. A year later, I was on the Atkins diet to lose weight (finally managed to lose 10 pounds), and managed to get pregnant with our daughter. Two years ago I had another miscarriage. In thinking about it, I think the reason I was able to stay pregnant with our daughter was because I'd been doing Atkins, which means I wasn't eating any grains, gluten-containing or otherwise.

Another thing I read that stuck out was that gluten itself is addicting. When I thought about it, this too made sense. I've always considered myself a 'carb addict', but it was usually cookies, crackers, and bread that I wanted to eat (and chocolate, but we won't get into that...), not potato chips or corn chips. Except Doritos- I love Doritos. I was eating some this weekend, and after the 3rd handful stopped to read the ingredients list. There's wheat in Doritos. Now I know why I have such a hard time eating just a couple of them.

Lessening of cravings
As I've made an effort to stay away from gluten, my cravings for carbs have lessened, and so have my cravings for chocolate. In the past, I could eat a bag of Ghiradelli peanut butter chocolate squares (super yummy!) in one afternoon. Now, if I eat 2 Hershey's Kisses (inferior chocolate, I know), I'm good. I don't have that urge to keep eating more and more. My brother's birthday was Sunday, so I had a piece of German chocolate cake. It was good in the moment, but not in the long run. I felt blah on Monday, and noticed more cravings to eat food (even though I wasn't really hungry).

Now that we're home from Disneyland (where I did eat some gluten-containing food), I've gone back to eating gluten free, and have also eliminated yeast, so no bread. It's so much easier this time- in the past when I tried to eliminate yeast and sugar it was very hard. I still need to lower my sugar intake, but it's going so much better. LMS's annual check up is in a week and a half and I'm going to have them do a full panel to test for food allergies. I'd like to know for sure if she has any problems we need to be aware of. If not, I don't need to worry so much about what she is/isn't eating. If she does, then we'll have to adjust our diet accordingly. She's had problems with milk in the past. Hopefully she doesn't actually have an allergy to it. It will be difficult to eliminate dairy- we do love our cheese and yogurt.

I didn't take the time and effort to plan GF meals for our Disney trip, but I will have to plan out our meals for our family reunion in July. We'll probably be gone for at least a week and a half: traveling, staying with family, and camping. When it comes to eating bread or jeopardizing a possible pregnancy, I'll skip the bread. Put in that context, it's a lot easier to resist the foods I shouldn't be eating. And it's nice not to have the cravings that have plagued me for years.

Gluten-free progress report

I've been eating gluten-free for about two and a half weeks now, with some purposeful slip ups on the weekends. I don't notice a huge difference during the week, but I have noticed that on Mondays I'm feeling more blah and tired than the rest of the week. Since I don't have celiac disease, I don't have a definite reaction telling me I ate something I shouldn't have.

I'm definitely eating wheat-free, and I think for the most part I'm managing gluten-free as well. There have been a couple things I haven't been completely sure about, but I'm learning more about which ingredients are gluten-free and which aren't. It's a process. So far I've been pretty happy with the gluten-free products I've used. The pastas taste basically the same to me, and I found some really good rice bread made by a local bakery. I wasn't too impressed with the rice tortillas we tried, but I've found quite a few gf snacks that taste pretty good. So I don't feel deprived, except on Thursdays, when hubby wants to go to Pizza Hut with his family. We did find a good gf pizza crust mix, but it's not the same as Pizza Hut. Oh well.

I'm considering going yeast free when we get back from our trip. It would mean no bread or pizza dough and no aged cheeses. This wouldn't be too bad. I think I could still eat the really yummy gf frozen waffles I found (I need to make a list of the brands I like), but I need to check on that. Technically I think I'm not supposed to eat very much sugar either. I need to check on that as well. I think I'm closer to a yeast-free diet than I have in the past, so hopefully it'll be a lot more doable this time around. And I'm really hoping it will help me finally lose weight.

Progress going gluten-free

Yesterday we went shopping for gluten-free food items. I still need to figure out some menus, so we just bought some basic stuff, and we'll have to do some more shopping in a day or two once I've got a menu figured out. I did find out that just because something is wheat-free, doesn't mean it's gluten-free, so one more thing to be careful of.

We also shopped for stuff for Little Miss Sunshine's birthday party and Hubby's graduation party. We're holding them both this Saturday. I'm making cakes for both of them, and we won't be gluten-free that day. I'm curious to see if I can tell a difference. Last year I made a pinata for LMS' bday, but I bought one this year. I was going to make it, but am just feeling too stressed and crummy. I'm taking metformin again, and while it has the side effect of regulating insulin and helping with weight loss, it also makes me very nauseous, which in turn makes me really tired. Not great overall, but I really need to lose weight and nothing else has worked, so I'm willing to put up with it.

We took advantage of the beautiful weather today and went for a 3 mile run/walk. I haven't gone running since getting my orthotics (just walking), and I felt good. No problems while running, other than being out of shape. Hopefully there won't be any pain tomorrow.

PCOS and a Gluten Free diet

Today I had an appointment for an ultrasound at the OB/GYN office. I've had this done about 5 years ago, but it didn't show much. This time around it showed that my ovaries do indeed have cysts. So that solidifies the PCOS diagnosis from five years ago. I had enough of the other symptoms usually associated with PCOS that my fertility specialist felt comfortable giving the diagnosis. Below is a picture (not mine, I didn't get copies of my ovaries) of an ovary with cysts (the dark spots). Lovely, huh?

Anyway, the tech doing the ultrasound mentioned that a girl with similar issues had been in yesterday: weight gain, inability to lose weight, infertility, irregular periods, etc. She had first come two years ago, and when she came back yesterday, she had lost a lot of weight. Turns out she went gluten free and yeast free, and combined with the meds (which I will also be taking), she was able to lose the weight and keep it off.
In researching PCOS some more, more and more people are seeing a connection between their PCOS and gluten issues. When they eliminated gluten, they were able to alleviate a lot of their other symptoms. I've requested a bunch of books from the library and will be reading up on gluten free eating. Once I've got that down, I may go yeast free also. I don't think it will be too difficult to add that on.

At first glance, a gluten free diet seems rather restrictive (no wheat, rye, or barley. The grains aren't too hard, it's all the packaged foods that have some form of gluten in them- as a thickener, modified food starch, in soy sauce, and so many other things- that you have to watch for), but in checking out other people's blogs, it's not all doom and gloom. The more fresh, unprocessed foods you eat, the lower the chance of accidentally eating gluten. And we're supposed to be eating fresh and unprocessed food anyway...
I've found several sites with yummy-looking recipes (and they don't look too time consuming, either), so I need to work on changing my thought processes and change how I shop and how I cook. It will take effort, but it will be worth it. I'm supposed to be eating yeast free anyway, so hopefully this will make it easier to get there. I am definitely a sugar and carb addict, which has always put a wrench in the works before. Others have said that cravings disappeared once they went gluten and yeast free. Hopefully that proves the same for me. It will be a journey.